Privacy and Digital Data of Children with Disabilities: Scenes from Social Media Sharenting

Open Access Journal | ISSN: 2183-2439

Article | Open Access

Privacy and Digital Data of Children with Disabilities: Scenes from Social Media Sharenting


  • Gerard Goggin Wee Kim Wee School of Information and Communication, Nanyang Technological University, Singapore
  • Katie Ellis Centre for Culture & Technology, Curtin University, Australia


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Abstract:  Children with disabilities have been an overlooked group in the debates on privacy and data management, and the emergence of discourses on responsibilization. In this article, we offer a preliminary overview, conceptualization, and reflection on children with disabilities, their experiences and perspectives in relation to privacy and data when it comes to existing and emergent digital technology. To give a sense of the issues at play, we provide a brief case study of “sharenting” on social media platform (that is, sharing by parents of images and information about their children with disabilities). We conclude with suggestions for the research and policy agenda in this important yet neglected area.

Keywords:  accessibility; children with disabilities; data rights; disability rights; Internet rights; privacy

Published:   10 November 2020


DOI: https://doi.org/10.17645/mac.v8i4.3350


© Gerard Goggin, Katie Ellis. This is an open access article distributed under the terms of the Creative Commons Attribution 4.0 license (http://creativecommons.org/licenses/by/4.0), which permits any use, distribution, and reproduction of the work without further permission provided the original author(s) and source are credited.